Idic15 Canada is please to partner with the Rare Disease Foundation in order to make the Parent to Parent Resource meetings available in your area. The parent groups initially started back in 2008, found that when a group of parents sat around the same table, a similar diagnosis was not the binding factor but rather the shared experiences. This initial parent group has now become a Parent Resource Network.
Sharing your experiences with your local rare disease family can help reduce isolation, provide local information and resources and be a great place to find a community sharing similar experiences.
Follow this Link to The Rare Disease Foundation and you can view all the wonderful resources and information they provide for support.