Rare Disease Foundation

Idic15 Canada is please to partner with the Rare Disease Foundation in order to make the Parent to Parent Resource meetings available in your area.  The parent groups initially started back in 2008, found that when a group of parents sat around the same table, a similar diagnosis was not the binding factor but rather the shared experiences. This initial parent group has now become a Parent Resource Network. 
Sharing your experiences with your local rare disease family can help reduce isolation, provide local information and resources and be a great place to find a community sharing similar experiences.

Follow this Link to The Rare Disease Foundation and you can view all the wonderful resources and information they provide for support.
If you are interested in starting a parent resource group we would love to assist you.  Contact: This email address is being protected from spambots. You need JavaScript enabled to view it. for further information.   As the community grows, patients and families will develop a strong voice as a community of rare disease advocates. 

Unique Canada Facebook Family Support Group

 Unique has set up these Unique Facebook groups to be a caring and supportive environment for parents of children (and adults) with rare chromosome disorders and member families only and is a secret group. You must first register as an official member of Unique to be granted access to these groups, or be related to a member as a close family relative i.e. sibling or grandparent and for that you first need to ask the member's permission.  Click on the links below or email This email address is being protected from spambots. You need JavaScript enabled to view it. for more information

Canadian Specific Unique Group    

Unique Chromosome Network Cafe